After being a member since the early years of the organization, Sabina is happy to join the FSIG team. Diagnosed with Fabry in 1984, Sabina and her sisters have all served as caregivers in their family. Her personal and family experiences have fueled her passion for supporting the Fabry community. She is dedicated to creating meaningful connections among patients and families, offering understanding and encouragement along the journey. She is especially committed to amplifying the patient voice and ensuring it’s heard and valued in every aspect of care and research.
