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Fabry Support & Information Group

Our Mission

It is the mission of the Fabry Support & Information Group (FSIG) to raise awareness of Fabry disease and its symptoms, to advocate for community needs and to lead the fight for the most effective treatment possible and eventually a cure. FSIG provides a link for the Fabry community to information, each other, the medical community, researchers, the pharmaceutical industry and regulatory authorities. FSIG strives to support affected families and individuals lead fuller lives.

Years

23

Helping Families

Over

270

Patient Stories

Over

1.1m

Visitors

Over

230

Patient Meetings

Our Story

FSIG was started in 1996 as a “kitchen table” support group

formed by two Fabry patients and a supportive family member with the hope that their particular understanding of this disease, combined with experience at gathering information and working with doctors could benefit others. FSIG is a continually growing and expanding organization constantly looking for new opportunities to assist in improving patient’s lives.

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Featured

Learn the basics of Fabry disease from Dawn Laney, MS, CGC, CCRC. Dawn is a Genetic Counselor at Emory University School of Medicine and specializes in Fabry disease. This is the Fabry 101 presentation from the FSIG Expert Fabry Conference 2019 in Orlando, FL.