skip to Main Content

COVID-19 ALERT!: Start using the Appointment Companion to support your remote appointments

Fabry Support & Information Group

Our Mission

It is the mission of the Fabry Support & Information Group (FSIG) to raise awareness of Fabry disease and its symptoms, to advocate for community needs and to lead the fight for the most effective treatment possible and eventually a cure. FSIG provides a link for the Fabry community to information, each other, the medical community, researchers, the pharmaceutical industry and regulatory authorities. FSIG strives to support affected families and individuals lead fuller lives.

Years

23

Helping Families

Over

270

Patient Stories

Over

1.1m

Visitors

Over

230

Patient Meetings

Our Story

FSIG was started in 1996 as a “kitchen table” support group

formed by two Fabry patients and a supportive family member with the hope that their particular understanding of this disease, combined with experience at gathering information and working with doctors could benefit others. FSIG is a continually growing and expanding organization constantly looking for new opportunities to assist in improving patient’s lives.

Watch Our Story

Decide Together

Help your Fabry care team understand your treatment goals and challenges at your next visit using the Appointment Companion

Learn More

Featured

COVID-19 and Fabry Disease
Heather Lau, MD, Director of the Lysosomal Storage Disease Program at NYU Langone Health, provides an overview of how to manage a person with a Fabry disease during the current COVID-19 pandemic.
Due to the large variance in symptoms seen in Fabry disease patients, clinicians treating them for COVID-19 need to be aware of the multiple organs affected by Fabry disease in how it relates to COVID-19 management.