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Fabry Support & Information Group

Our Mission

It is the mission of the Fabry Support & Information Group (FSIG) to raise awareness of Fabry disease and its symptoms, to advocate for community needs and to lead the fight for the most effective treatment possible and eventually a cure. FSIG provides a link for the Fabry community to information, each other, the medical community, researchers, the pharmaceutical industry and regulatory authorities. FSIG strives to support affected families and individuals lead fuller lives.



Helping Families



Patient Stories






Patient Meetings

Our Story

FSIG was started in 1996 as a “kitchen table” support group

formed by two Fabry patients and a supportive family member with the hope that their particular understanding of this disease, combined with experience at gathering information and working with doctors could benefit others. FSIG is a continually growing and expanding organization constantly looking for new opportunities to assist in improving patient’s lives.

Watch Our Story

Decide Together

Help your Fabry care team understand your treatment goals and challenges at your next visit using the Appointment Companion

Learn More


Organ Donation

Timothy Nelson is on The Great Kidney Pursuit as he is in stage 4 kidney failure. His transplant team at the University of Minnesota recommends we get the word out about organ donation. Find out more details here: