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Northwest Regional Meeting

We are thrilled to introduce our first-ever Northwest Regional Fabry Patient Meeting, happening in Billings, Montana, on Saturday, September 27, 2025.

 

Event Highlights:

  • A welcoming and informative in-person gathering tailored for Fabry patients and caregivers in the Northwest

  • Opportunities to learn about the latest in Fabry disease management, connect with fellow community members, and participate in support sessions

We look forward to fostering meaningful connections, sharing vital information, and supporting one another in this beautiful region.

 

 

When:    September 27, 2025

Where:   Hilton Garden Inn

Who:      All Fabry Community

What to wear: Comfortable clothing is appropriate for this event. 

Agenda: Northwest Regional Meeting

 

Friday Evening – Family Time to Talk
If you’re arriving Friday night, join us for a relaxed, informal gathering. This will be a special time for families to connect, share stories, and enjoy each other’s company before the main program begins.

Hotel Accommodations:
Traveling from out of town? You can book your room online using this link.

Travel Assistance:
We understand distant travel can sometimes be costly. Financial assistance is available for those who qualify. Please complete this form if you require assistance.

If you have any questions, you can call us at 660-463-1355.

Stay connected with us: Follow FSIG on Facebook, Instagram and Twitter for news and updates and contact Connie or Lisa with questions.

The event is finished.

The Regional Meeting RSVP ticket sales has ended!
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