FSIG’s 9th Annual Fun Run & Walk will remain VIRTUAL this year to help support our Fabry community. We’re living in challenging and uncertain times and that’s why we’re asking you to run or walk for a great cause. Help…
A special purpose meeting where industry will give updates and answer questions from the Fabry community. You can send your questions ahead of time to lbacon@fabry.org. The agenda for the event is below.
Special Speaker Nadia Ali, Director of Psychological Resources, Genetic Clinical Trials Center, Co-Assistant Director, Genetic Counseling Training Program
Special Speaker John Jefferies MD, MPH, FACC, FAHA, FHFSA, FAAP, Chief of Cardiology, University of Tennessee Health Science Center
Saturday, September 12, 2:00 PM (EST) Join us for a Fabry virtual meeting as we partner with UC Irvine and host special guests Dr. Anjay Rastogi, Clinical Chief of Nephrology; Dr. Heather Lau, Neurologist and Director of LSD Program; Dr.…
