FSIG is delighted to host a Sacramento Fabry Get Together with Dr. Kendra Bjoraker and Ayaka Suzuki. If you live in the area or surrounding areas and are able to attend the luncheon, please RSVP by April 20th. Embassy Suites…
FSIG’s 9th Annual Fun Run & Walk will remain VIRTUAL this year to help support our Fabry community. We’re living in challenging and uncertain times and that’s why we’re asking you to run or walk for a great cause. Help…
A special purpose meeting where industry will give updates and answer questions from the Fabry community. You can send your questions ahead of time to lbacon@fabry.org. The agenda for the event is below.
Special Speaker Nadia Ali, Director of Psychological Resources, Genetic Clinical Trials Center, Co-Assistant Director, Genetic Counseling Training Program
