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Decide Together

Help your Fabry care team understand your treatment goals and challenges at your next visit using the Appointment Companion

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Pathfinder is a free, easy-to-use tool that captures your treatment preferences, goals, and challenges so you can effectively communicate with your Fabry care teams.

As part of your experience, you can also find and compare specialty treatment centers and receive personalized matches to clinical trials.

With a few easy steps, you and your loved ones stay at the center of your care no matter where you are in your journey.

Appointment Companion

Appointment Companion

Help your clinician further understand your treatment goals, preferences, and challenges at your next appointment.

Treatment Center Selector

Treatment Center Selector

Coming soon

Find and compare highly specialized fabry treatment centers that best suit your individual needs.

Clinical Trial Finder

Clinical Trial Finder

Coming soon

Get personalized matches to clinical trials and anonymously help researchers advance medical treatments.

How It works

Build a Conversation With Your Care Team

Quickly and easily share what matters most to you when it comes to your care. Develop your thoughts, prioritize your treatment goals and communicate any challenges. You may also save time in the waiting room by filling out any necessary health surveys in advance of your appointment.

In a matter of minutes your Appointment Companion captures the full you.

Discover Clinical Trials

Participating in a clinical trial is an invaluable way to get excellent medical care and play a part in advancing research for better treatments and a cure for Fabry.

Pathfinder is designed to make it easy for you to find available trials, and – where trials do not yet exist – inspire researchers to focus on new areas of study.

Fabry is a rare disease, and trials can take years to accrue which can dramatically slow down the process of evaluating a drug’s effect. The good news is more and more patients like you are becoming empowered to take part.

Browse & Compare Treatment Centers

When you are diagnosed with a rare disease like Fabry it can be hard to find physicians that are knowledgeable about your disease. Finding a treatment center that has treated patients like you is an important step toward making sure that you get the best care. Pathfinder can help you find treatment centers, see what services they offer, their experience in treating patients like you and compare them to one another.

Created for you

Designed with fabry patients and leading treatment centers, Pathfinder helps solve some of the biggest challenges for patients just like you.

Join over 1,300 patients and caregivers using Pathfinder today.

Pathfinder is brought to you by the FSIG, a leading foundation accelerating Fabry research, and Patient Discovery Solutions, a leader in patient-provider decision technologies.

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Start using Fabry Patient Pathfinder today!