FSIG Expert Fabry Conference Agenda
Paradise Point Resort & Spa
1404 Vacation Road
San Diego, CA 92109
Your registration fee will include:
- Hotel room for Friday & Saturday nights
- Friday & Saturday night meals
- Saturday lunch
- Saturday & Sunday breakfast
*This weekend is valued at $1,200 per person.
Paradise Point Resort & Spa
1404 Vacation Road
San Diego, CA 92109
FSIG will once again be giving out two special awards this year: Caregiver and Best Doctor or Medical Professional Award!
If you or a loved one has received Exceptional Care from your Caregiver (mom, dad, grandmother, etc), now is your chance to show your gratitude.
Caregiver Nominations (Please print the form and mail, email or fax the completed form to FSIG.)
Do you know a doctor, genetic counselor, nurse or office staff who defines the meaning of caring? Is there a healthcare professional who has gone above and beyond to help support you or your family? If someone comes to mind when you hear these questions, then take a minute to nominate that individual for the Best Doctor or Medical Professional Award!
Medical Professional Nominations (Please print the form and mail, email or fax the completed form to FSIG.)
All awards will be presented at the 2023 FSIG Expert Fabry Conference in February. Nominations will be accepted now through January 10, 2023. Complete these forms today and spread the news!
Mail: FSIG, PO Box 510, Concordia, MO 64020
Frequently Asked Questions
What can I expect if I attend the FSIG Expert Fabry Conference?
Learn from guest speakers, meet with doctors who are knowledgeable about Fabry disease, and meet new families who share common concerns and experiences. The goal of this conference is to educate Fabry patients and family members. This conference is a fun opportunity to make new friends and reconnect with old friends you have not seen in a while.
Will there be a virtual option for this conference?
Yes, there will be a live stream of the conference for those that wish to view the presentations online. There will be a $25 registration fee per household for the virtual option. Registration is required.
Is there a limit to conference attendance - how do I register?
Yes, there are a limited number of rooms available. We wish we could accommodate everyone in the Fabry community, but funds do not allow this. We have contracted for a block of 50 rooms per night. Availability is limited on a first come, first serve basis. To register, click the registration link above to fill out the on-line registration form.
Can I extend my stay at the hotel?
If you wish to extend your stay, we have negotiated so you may obtain a room for the same reduced rate of $239.00 plus tax, charges, and other fees for three days before or three days after the conference. You will have to call the hotel and book and pay for these rooms yourself, just mention that you will be attending the FSIG Expert Fabry Conference.
May I receive a refund if I am not able to attend the conference?
If you cancel your registration by January 12, 2024, you will receive a full refund. After that date no refund will be provided. All refunds will occur after the conference, and may take up to two weeks.
Who may attend the conference?
The conference is designed for Fabry patients, their family members and caregivers. This includes affected individuals, parents, children, siblings, significant other, grandparents and supportive friends.
What is included in the registration fee?
This conference is a great educational and networking opportunity that benefits everybody. We truly wish the conference could be completely free, but conference sponsorship does not cover all expenses. The registration fee is a real bargain and goes toward the cost of 2 nights lodging, meals throughout the conference, facility, speaker and medical experts, plus many additional conference expenses.
Is there a deadline to register for the conference?
Conference assistance registration deadline, and the registration deadline is December 15,2023. or when the block of rooms is filled, whichever comes first.
Do I have to stay in the conference hotel?
Staying at the same hotel the conference is held at is important and lends itself to the very purpose of the conference. You do not have to stay at the same hotel, but FSIG will not pay for your hotel room otherwise and cannot guarantee anything regarding your alternate choice of hotel.
Will I be able to talk to doctors about my/loved one’s Fabry disease?
Many of the doctors are willing to talk about your disease to the best of their ability on an individual basis. Limitations on discussions will probably exist due to available time, available information and other factors. Please feel free to take advantage of this conference time to ask questions of the knowledgeable experts on Fabry disease.
Is there any cost to attend?
Yes, conferences of this type are very expensive. Travel expenses to the conference and back home are not included. There is a nominal registration fee of $75.00 for the first registrant per room and $25.00 for each additional registrant eleven years and older. Children ten and younger are free.
How many will a room accommodate?
Queen rooms accommodate up 4 people. The room cost is included in the registration fee.
Will childcare be provided?
Childcare will be provided. The cost of childcare is included in the registration fee. Children of all ages are encouraged to utilize the Youth Hangout. Activities and supplies will be at your child’s disposal. Dependable and reliable adults will be watching your children. We believe that if parents know their children are safe they will get the most from the conference. If you are bringing children to the conference please let us know their ages and whether they will be utilizing the Youth Hangout on the registration form or on-line.
If I am unable to attend the full conference, can I pay a reduced registration fee?
There is no adjustment to the fee for days not attended. The fee will be the same whether you stay one or two nights. FSIG’s overall event costs remain the same whether you attend part or all of the conference.
Do I have to pay for my hotel room during the conference?
The cost of your hotel room for Friday night and Saturday night is covered by FSIG. Your only additional costs beyond the nominal registration fee would be if you stay any extra nights, order room service, rent a movie or request any additional services that are charged to your room.