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FSIG’s First Fabry Women’s Summit will be November 11-13, 2022 in Charlotte, North Carolina.

Across from the Spectrum Center indoor arena, the Springhill Suites Uptown is a relaxed all-suite, glass building hotel located near the NASCAR Hall of Fame and 3 miles from Freedom Park.

At this summit you can meet and share with women just like you while hearing engaging learning skills that will improve your everyday life. This weekend will be filled with beautiful views of the city, yummy food, new connections and rejuvenation!

Learn something new about Fabry

Get to know other Fabry women

Learn sustainable daily wellness habits

Restore and rejuvenate your body

Take time to understand and to address a need or problem in your life

FSIG’s Fabry Women’s Summit Agenda

Subject to change


Friday, November 11

02:00 – 6:00 PM      Registration

Stop by any time to check-in with us and get your registration information and name badge for the conference. Visit with our Fabulous Sponsors & play the Sponsor Game!

06:00 – 09:00 PM    Networking and Fun at The Revel Room in Uptown Charlotte!


Saturday, November 12

08:30 am   Mingle & Coffee

09:00 am   Welcome

09:05 am   Fabry Heart: What you need to know & How it Makes a Difference Dawn Laney, MS, CGC, CCRC

09:45 am   Stress Management Linda Quaranta, MS, LMFT

10:30 am   Break

10:45 am   Fabry Mind Body Connection Stacey Feuer PsyD, MLD

11:15 am   Chair Yoga

11:45 am   Fabry Caregiver Roundtable Cheryl Barcomb, Tabitha Dowdy, & Andrea Hoffman

12:15 pm   Lunch

01:15 pm   The Menu is Right – Game time!  Tia Jones

01:45 pm   Break

02:00 pm   Fabulous Fabry Females Roundtable Dawn Laney MS, CGC, CCRC

03:30 pm   Time for the fun activity you chose at registration!

  • Axe Throwing
  • Board & Brush Painting Session
  • Or resting and enjoying beautiful Charlotte on your own.

06:15 PM   GROUP PHOTO on the Rooftop Black Dressy Dinner Attire (if possible)

06:30 pm   Dinner and FUN!


Sunday, November 13

08:30 am  Mingle & Coffee

09:00 am  Morning activity you don’t want to miss!

09:30 am  Empowerment/Advocating for Yourself/How to Talk to Your Doctors  Carli Zegers Ph.D., MBA, APRN, FNP-BC

11:00 AM  Closing Remarks

Genetic Counselor & Research Coordinator, Assistant Professor & Director Emory Genetic Clinical Trial Center

Dawn Laney

MS, CGC, CCRC – Genetic Counselor/Research Coordinator

Carli Zegers

Carli Zegers


Stacey Feuer (2)

Stacey Feuer


Linda Quaranta Head shot

Linda Quaranta


Tia Jones

Tia Jones

Fabry Caregiver & Testing 4 Tots Founder

Holly Hoffman

Holly Hoffman

Emcee, Motivational Speaker

Cheryl Barcomb

Cheryl Barcomb

Fabry Patient & Caregiver

Andrea Hoffman

Andrea Hoffman

Fabry Caregiver

Tabitha Dowdy

Tabitha Dowdy

Fabry Patient & Caregiver

Your free-will support will include:

  • Transportation to and from the event
  • Hotel room for Friday and Saturday nights
  • Friday & Saturday night meals
  • Saturday lunch
  • Saturday & Sunday breakfast

*This weekend retreat is valued at $1,500 per person. Your donation of any kind will be greatly appreciated. Registration scholarships will be offered upon request.


Orchid Sponsor

Rose Sponsor

Daisy Sponsor