FSIG’s First Fabry Women’s Summit will be November 11-13, 2022 in Charlotte, North Carolina.
Across from the Spectrum Center indoor arena, the Springhill Suites Uptown is a relaxed all-suite, glass building hotel located near the NASCAR Hall of Fame and 3 miles from Freedom Park.
At this summit you can meet and share with women just like you while hearing engaging learning skills that will improve your everyday life. This weekend will be filled with beautiful views of the city, yummy food, new connections and rejuvenation!
Learn something new about Fabry
Get to know other Fabry women
Learn sustainable daily wellness habits
Restore and rejuvenate your body
Take time to understand and to address a need or problem in your life
FSIG’s Fabry Women’s Summit Agenda
Subject to change
Friday, November 11
02:00 – 6:00 PM Registration
Stop by any time to check-in with us and get your registration information and name badge for the conference. Visit with our Fabulous Sponsors & play the Sponsor Game!
06:00 – 09:00 PM Networking and Fun at The Revel Room in Uptown Charlotte!
Saturday, November 12
08:30 am Mingle & Coffee
09:00 am Welcome
09:05 am Fabry Heart: What you need to know & How it Makes a Difference Dawn Laney, MS, CGC, CCRC
09:45 am Stress Management Linda Quaranta, MS, LMFT
10:30 am Break
10:45 am Fabry Mind Body Connection Stacey Feuer PsyD, MLD
11:15 am Chair Yoga
11:45 am Fabry Caregiver Roundtable Cheryl Barcomb, Tabitha Dowdy, & Andrea Hoffman
12:15 pm Lunch
01:15 pm The Menu is Right – Game time! Tia Jones
01:45 pm Break
02:00 pm Fabulous Fabry Females Roundtable Dawn Laney MS, CGC, CCRC
03:30 pm Time for the fun activity you chose at registration!
- Axe Throwing
- Board & Brush Painting Session
- Or resting and enjoying beautiful Charlotte on your own.
06:15 PM GROUP PHOTO on the Rooftop Black Dressy Dinner Attire (if possible)
06:30 pm Dinner and FUN!
Sunday, November 13
08:30 am Mingle & Coffee
09:00 am Morning activity you don’t want to miss!
09:30 am Empowerment/Advocating for Yourself/How to Talk to Your Doctors Carli Zegers Ph.D., MBA, APRN, FNP-BC
11:00 AM Closing Remarks
Dawn Laney
MS, CGC, CCRC – Genetic Counselor/Research Coordinator
Carli Zegers
PhD, MBA, APRN, FNP-BC
Stacey Feuer
PsyD, MLD
Linda Quaranta
MS, LMFT
Tia Jones
Fabry Caregiver & Testing 4 Tots Founder
Holly Hoffman
Emcee, Motivational Speaker
Cheryl Barcomb
Fabry Patient & Caregiver
Andrea Hoffman
Fabry Caregiver
Tabitha Dowdy
Fabry Patient & Caregiver
Your free-will support will include:
- Transportation to and from the event
- Hotel room for Friday and Saturday nights
- Friday & Saturday night meals
- Saturday lunch
- Saturday & Sunday breakfast
*This weekend retreat is valued at $1,500 per person. Your donation of any kind will be greatly appreciated. Registration scholarships will be offered upon request.
THANK YOU TO OUR FABRY WOMEN'S SUMMIT SPONSORS!
Orchid Sponsor
Rose Sponsor
Daisy Sponsor
