FSIG 10th Annual Fun Run & Walk

Saturday, April 22nd – Saturday, April 29th

FSIG’s 10th Annual Virtual Fun Run & Walk will be held April 22 – April 29, 2023. The Fabry Fun Run is a jog or stroll of any distance in your neighborhood or anywhere safe. Participants are certainly welcome to walk further if they choose. This event is a non-athletic, non-competitive way to raise awareness, honor the families affected by Fabry disease, remember those we have lost and a way to stay in shape.

Help us raise money for the Fabry community! Your registration fee will help support the RAFT program. For more information and to register for this important event, please follow the link below.

Our Goal: $20,000

Location: It’s virtual so anywhere safe! Please make sure to take a photo of you completing your goal and tag us on Facebook at Fabry Support & Information Group using the hashtag #RunningforFabry. If you want, you can also take photos or videos of your activity and send it to FSIG at lbacon@fabry.org.

Cost: Registration is only $30 per person or $60 per Fabry families for up to 4 registrations to the same address. Register by April 7th to receive a t-shirt. There are no event shirts available at this time. To register, please follow the link below.

First Registration $30

Second Registration $60

Third Registration $60 (use Family30off code)

Fourth Registration $60 (use Family60off code)

Live Patient Meeting Saturday, April 29

On Saturday, April 29 at 11 (PST), we will conclude with a hybrid patient meeting in Sacramento, CA with Dr. Kendra Bjoraker.

If running or walking is not your thing but you want to attend the live patient meeting or virtual option, please register here or email FSIG at lbacon@fabry.org.