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FSIG’s 9th Annual Fun Run & Walk will remain VIRTUAL this year to help support our Fabry community during these unprecedented times.

We’re living in challenging and uncertain times and that’s why we’re asking you to run or walk for a great cause. Help us raise money for the Fabry community! You can choose to run a virtual 5k or do a fun one mile walk. Get a free t-shirt with every entry. Your registration fee will help support our RAFT program. For more information and to register for this important event, please follow the link below.

Our Goal: $20,000

Location: Anywhere safe!

5k or 1 Mile: You can choose either or anything in between! Just make sure to take a photo of you completing your goal and tag us on Facebook at Fabry Support & Information Group using the hashtag #RunningforFabry. If you want, you can also take photos or videos of your activity and send it to our office email at

Saturday, May 21st

On Saturday, May 21 at Noon (EST), we will conclude with a patient meeting that will celebrate all of our participants and hear from a special speaker. We will also be giving updates on our fundraising goal. More information to come.

If running or walking is not your thing but you want to attend the virtual patient meeting, please email us at and we will send you the link information.